Living with spinal muscular atrophy taught the author that every life deserves to be seen in full. India's rare disease policy must do the same by guaranteeing equitable access to treatment.
Seba Salam (she/her) is a 27-year-old artist, writer, and blogger from Kerala, India. Bedridden since 2017, she uses her creative voice to raise awareness about rare diseases and advocate for the lived realities of people with disabilities.
Email: seba.lettersandlines@gmail.com
